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ARTHROGRYPOSIS MULTIPLEX CONGENITA AWARENESS DAY
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HON. NICOLE MALLIOTAKIS
of new york
in the house of representatives
Wednesday, June 16, 2021
Ms. MALLIOTAKIS. Madam Speaker, I rise today to recognize the National Day of Arthrogryposis Multiplex Congenita (AMC) on Wednesday, June 30, 2021. This condition is present in 1 in 3,000 babies a year, which causes many joints of the body to be stiff and crooked at birth. There are over 400 different types of AMC, which is an umbrella diagnosis that derives from many syndromes. This condition is not curable, but it is treatable. A newborn with AMC lacks the range of motion in one of more joints, but with early intervention, therapies can help children achieve their cognitive, social, emotional, and physical development goals. New York State has one of the most active AMC awareness organizations with grassroots efforts located in my district, the borough of Staten Island, NY. My constituent, Valerie Pepe, was born with AMC on June 11, 1967. Valerie now hosts the AMC Music Festival which helps raise money and awareness for those affected by AMC. Thank you for allowing me to recognize her efforts and to bring awareness to the families affected by AMC. As a member of the Rare Disease Caucus, it is my hope that Congress will continue to encourage research and medical innovation to treat AMC.
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SOURCE: Congressional Record Vol. 167, No. 105
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